Sanctuary's Amanda Tapping tweeted on September 3, 2011:
Win Lunch w me and gorgeous @jewelstaite! Or lunch date w @RyRobbins + @RobertLawrenson! @onceuponacure Auction Sept 5
Amanda Tapping
Jewel Staite
Once Upon a Cure is dedicated to Trey Purcell. His father, Ryan Purcell worked as a camera operation for the Stargate franchise, beginning with Stargate Atlantis, and then Stargate Universe. Ryan's son Trey was diagnosed with a rare genetic and progressive disease called Hunter Syndrome, or MPS-II (mucopolysaccharidosis II) in 2006. The Purcells established the MPS-II Research Fund within the Canadian MPS Society (charity number: 12903 0409 RR0001) and began fundraising. Their efforts started with the annual “Tacos for Trey” fundraiser, a local event geared towards families – the goal of which was to fund one $40,000 research grant each year specifically for Hunter Syndrome research.
With this Gala, we are hoping to take the fundraising, which began with “Tacos for Trey,” to a higher level. All donations made to the MPS II Fund go directly towards MPS II research, minus a 5% administration fee. The costs associated with advocacy and fundraising are either donated or paid for by the Purcell family. Since 2007, the MPS II Fund has granted $184,000 to research.
To read more about Trey and the Purcells, and their journey with this rare disease, you can visit Trey’s site here: http://www.treypurcell.com/blog/.
Click here to read more about the Once Upon a Cure September 24 Gala in Vancouver, British Columbia, Canada.
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